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Our Members

About NHC Membership

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The NHC is a stakeholder-informed, patient-focused organization that forges consensus among diverse organizations and drives patient-centered health policy.

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It is the diversity of our more than 170 members that enables us to create a collaborative environment and put forward consensus public policy solutions that keep the patient central to all we do.

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The NHC delivers a wide range of member services, including meetings and conferences, action teams, affinity groups, webinars, and projects to engage with us and network with each other.

Patient organization members meet the NHC Standards of Excellence®, demonstrating the highest degree of accountability and transparency.

This summer, the National Health Council (NHC) Board of Directors approved new membership categories clarifying and reducing the categories from 5 to 3. Over the next few months, the NHC will begin transitioning to these new categories. This page will be updated in January 2024 to reflect the new categories. The following are brief descriptions of the updated member categories.  Click here to see what new category your organization falls under.

Patient Organizations (previously known as Voluntary Health Agencies) 
Patient Organizations (POs) are comprised of individuals who live with chronic disease(s) and/or disability(ies) and their family caregivers. They engage in an array of direct-service programs, which can include membership, support, advocacy, education, and research. Organizations in this category focus on specific patient and caregiver communities, are established as a tax-exempt nonprofit, and gain support for their mission from a wide range of the public. 

Partners of Patient Organizations (previously known as Professional and Membership Associations and Nonprofit Organizations with an Interest in Health) 
Partners of Patient Organization (PPOs) members may provide research, clinical, regulatory and/or policy expertise that impacts the health ecosystem in ways that are collaborative with patients and family caregivers managing chronic diseases and disabilities. Current organizations in this member category represent providers, researchers, and advocacy organizations with a broad focus on an underserved community and/or category of health consumers. Organizations in this category must be established as a tax-exempt nonprofit.  

Business and Industry 
Business and Industry (B&I) members share a focus on providing goods, services, and knowledge that are disseminated through the health ecosystem to aid in the treatment and management of chronic conditions and disabilities. Also included in this category are nonprofit associations that represent the business interests of certain sectors within the health ecosystem. 

Navigate to a section
Patient Organizations
Partners of Patient Organizations
Business & Industry

Patient Organizations

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Alpha-1 Foundation
  • Patient Organizations
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ALS Association
  • Patient Organizations
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Alzheimer’s Association
  • Patient Organizations
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ACS
American Cancer Society
  • Patient Organizations
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American Diabetes Association
  • Patient Organizations
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American Foundation for Suicide Prevention
  • Patient Organizations
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American Heart Association
  • Patient Organizations
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American Kidney Fund
  • Patient Organizations
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American Liver Foundation
American Liver Foundation
  • Patient Organizations
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American Lung Association
  • Patient Organizations
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Amputee Coalition
  • Patient Organizations
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Arthritis Foundation Logo - Color
Arthritis Foundation
  • Patient Organizations
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Asthma and Allergy Foundation of America
  • Patient Organizations
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autoimmune association
Autoimmune Association
  • Patient Organizations
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Barth Syndrome Foundation
  • Patient Organizations
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Beyond Celiac
  • Patient Organizations
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Bone Health and Osteoporosis Foundation
  • Patient Organizations
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Brain Injury Association of America (BIAA)
  • Patient Organizations
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Breakthrough T1D
  • Patient Organizations
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Celiac Disease Foundation
  • Patient Organizations
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COPD Foundation
  • Patient Organizations
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Crohn’s & Colitis Foundation
Crohn’s & Colitis Foundation
  • Patient Organizations
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Cure SMA
  • Patient Organizations
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Easterseals
  • Patient Organizations
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Epilepsy Foundation
  • Patient Organizations
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EveryLife Foundation for Rare Diseases
  • Patient Organizations
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FH Foundation
Family Heart Foundation
  • Patient Organizations
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GBS|CIDP Foundation
  • Patient Organizations
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Global Liver Institute
  • Patient Organizations
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GO2 for Lung Cancer
  • Patient Organizations
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Haystack Project
  • Patient Organizations
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Hemophilia Federation of America
Hemophilia Federation of America
  • Patient Organizations
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Huntington's Disease Society of America
Huntington’s Disease Society of America
  • Patient Organizations
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Hydrocephalus Association
  • Patient Organizations
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Hypertrophic Cardiomyopathy Association (HCMA)
  • Patient Organizations
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Immune Deficiency Foundation
  • Patient Organizations
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International Rett Syndrome Foundation
  • Patient Organizations
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Leukemia & Lymphoma Society
  • Patient Organizations
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LUNGevity Foundation
  • Patient Organizations
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Lupus Foundation of America
  • Patient Organizations
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Lupus Research Alliance
Lupus Research Alliance
  • Patient Organizations
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Mental Health America
  • Patient Organizations
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Mission MSA
  • Patient Organizations
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Myasthenia Gravis Foundation of America
  • Patient Organizations
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NAMI
  • Patient Organizations
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National Alopecia Areata Foundation
  • Patient Organizations
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National Bleeding Disorders Foundation
  • Patient Organizations
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National Blood Clot Alliance
  • Patient Organizations
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National Eczema Association
  • Patient Organizations
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National Foundation for Ectodermal Dysplasias
  • Patient Organizations
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National Foundation for Infectious Diseases (NFID)
  • Patient Organizations
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National Kidney Foundation
  • Patient Organizations
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National Multiple Sclerosis Society
  • Patient Organizations
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National Organization for Rare Disorders
  • Patient Organizations
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National Psoriasis Foundation
  • Patient Organizations
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Obesity Action Coalition
  • Patient Organizations
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Osteogenesis Imperfecta Foundation
  • Patient Organizations
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Parent Project Muscular Dystrophy
  • Patient Organizations
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Parkinson's Foundation
Parkinson’s Foundation
  • Patient Organizations
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Patient Empowerment Network
  • Patient Organizations
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Prevent Blindness
  • Patient Organizations
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Prevent Cancer Foundation logo
Prevent Cancer Foundation
  • Patient Organizations
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Pulmonary Fibrosis Foundation
  • Patient Organizations
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RESOLVE: The National Infertility Association
  • Patient Organizations
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Sjögren’s Foundation
  • Patient Organizations
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Spina Bifida Association
  • Patient Organizations
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Susan G. Komen
  • Patient Organizations
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The LAM Foundation
  • Patient Organizations
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The Marfan Foundation
  • Patient Organizations
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The Myositis Association
  • Patient Organizations
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The Solve ME/CFS Initiative (Solve M.E.)
  • Patient Organizations
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The Trevor Project
  • Patient Organizations
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Tourette Association of America
  • Patient Organizations
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Vasculitis Foundation
Vasculitis Foundation
  • Patient Organizations
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VHL Logo
VHL Alliance
  • Patient Organizations
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WomenHeart: The National Coalition for Women with Heart Disease
  • Patient Organizations
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Partners of Patient Organizations

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Abdominal Core Health Quality Collaborative
  • Partners of Patient Organizations
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Academy of Managed Care Pharmacy
  • Partners of Patient Organizations
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AcademyHealth
  • Partners of Patient Organizations
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Accessia Health
  • Partners of Patient Organizations
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Aimed Alliance
  • Partners of Patient Organizations
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Alliance for Aging Research
  • Partners of Patient Organizations
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APC-Logo
Alliance for Pharmacy Compounding
  • Partners of Patient Organizations
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American Academy of Physical Medicine and Rehabilitation
  • Partners of Patient Organizations
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American Association of Caregiving Youth (AACY)
  • Partners of Patient Organizations
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American Association on Health and Disability
  • Partners of Patient Organizations
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American College of Rheumatology
  • Partners of Patient Organizations
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American Nurses Association (ANA)
  • Partners of Patient Organizations
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American Partnership for Eosinophilic Disorders (APFED)
  • Partners of Patient Organizations
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American Pharmacists Association
  • Partners of Patient Organizations
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American Society of Consultant Pharmacists
  • Partners of Patient Organizations
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ASHP logo
American Society of Health-System Pharmacists (ASHP)
  • Partners of Patient Organizations
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Arthritis National Research Foundation
  • Partners of Patient Organizations
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APIC
Association for Professionals in Infection Control and Epidemiology (APIC)
  • Partners of Patient Organizations
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Association for Vascular Access
  • Partners of Patient Organizations
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Association of Black Cardiologists
  • Partners of Patient Organizations
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Association of Cancer Care Centers (ACCC)
  • Partners of Patient Organizations
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Association of Schools and Colleges of Optometry
  • Partners of Patient Organizations
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Caregiver Action Network
  • Partners of Patient Organizations
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Center for Innovation & Value Research
  • Partners of Patient Organizations
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Coalition of Skin Diseases
  • Partners of Patient Organizations
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Council of Medical Specialty Societies (CMSS)
  • Partners of Patient Organizations
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Diabetes Leadership Council
  • Partners of Patient Organizations
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Diabetes Patient Advocacy Coalition
  • Partners of Patient Organizations
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FasterCures – A Center of the Milken Institute
  • Partners of Patient Organizations
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Food and Drug Law Institute
  • Partners of Patient Organizations
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FNIH logo
Foundation for the National Institutes of Health (FNIH)
  • Partners of Patient Organizations
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GSA-logo
Gerontological Society of America (GSA)
  • Partners of Patient Organizations
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Grange Advocacy
  • Partners of Patient Organizations
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Healthwell foundation logo
HealthWell Foundation
  • Partners of Patient Organizations
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HealthyWomen
  • Partners of Patient Organizations
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Hematology/Oncology Pharmacy Association (HOPA)
  • Partners of Patient Organizations
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ISOP logo
International Society of Pharmacometrics (ISoP)
  • Partners of Patient Organizations
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ISPOR-The Professional Society For Health Economics and Outcomes Research
  • Partners of Patient Organizations
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Medical Device Innovation Consortium
  • Partners of Patient Organizations
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Mosaic
  • Partners of Patient Organizations
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National Alliance for Caregiving
  • Partners of Patient Organizations
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National Alliance for Eye and Vision Research
  • Partners of Patient Organizations
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National Alliance of Healthcare Purchaser Coalitions
  • Partners of Patient Organizations
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National Association for Hearing and Speech Action
  • Partners of Patient Organizations
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National Association of Councils on Developmental Disabilities (NACDD)
  • Partners of Patient Organizations
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National Association of Hispanic Nurses
  • Partners of Patient Organizations
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National Black Nurses Association
  • Partners of Patient Organizations
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National Consumers League
  • Partners of Patient Organizations
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National Council of Urban Indian Health (NCUIH)
  • Partners of Patient Organizations
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National Medical Association (NMA)
  • Partners of Patient Organizations
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National Minority Quality Forum
  • Partners of Patient Organizations
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National Patient Advocate Foundation
  • Partners of Patient Organizations
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Orthopaedic Research and Education Foundation
  • Partners of Patient Organizations
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Patient Access Network (PAN) Foundation
  • Partners of Patient Organizations
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Pediatric Dermatology Research Alliance (PeDRA)
  • Partners of Patient Organizations
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Personalized Medicine Coalition
  • Partners of Patient Organizations
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Pharmacy Quality Alliance Logo
Pharmacy Quality Alliance
  • Partners of Patient Organizations
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Research!America
  • Partners of Patient Organizations
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Society for Women’s Health Research
  • Partners of Patient Organizations
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The Assistance Fund
  • Partners of Patient Organizations
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The Association for Professionals in Infection Control and Epidemiology (APIC)
  • Partners of Patient Organizations
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United States Pharmacopeia (USP)
  • Partners of Patient Organizations
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Business and Industry

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Advanced Medical Technology Association (AdvaMed)
  • Business and Industry
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Amazon logo
Amazon
  • Business and Industry
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AHIP
America’s Health Insurance Plans (AHIP)
  • Business and Industry
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Amgen
  • Business and Industry
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Ardelyx
  • Business and Industry
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Association for Accessible Medicines
  • Business and Industry
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AstraZeneca Pharmaceuticals
  • Business and Industry
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Aurinia Pharm logo
Aurinia Pharmaceuticals
  • Business and Industry
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B. Braun Medical Logo
B. Braun Medical Inc.
  • Business and Industry
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BioCryst
  • Business and Industry
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Biogen
  • Business and Industry
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Biotechnology Innovation Organization (BIO)
  • Business and Industry
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Boehringer Ingelhein new logo
Boehringer Ingelheim
  • Business and Industry
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Bristol-Myers Squibb Company
  • Business and Industry
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Cigna
  • Business and Industry
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Dexcom
  • Business and Industry
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Edwards Lifesciences
  • Business and Industry
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Eisai
  • Business and Industry
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Elevance Health logo
Elevance Health
  • Business and Industry
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Eli Lilly and Company
  • Business and Industry
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Exelixis Logo
Exelixis
  • Business and Industry
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Genentech
  • Business and Industry
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Gilead Sciences
  • Business and Industry
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GlaxoSmithKline
  • Business and Industry
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Grifols Inc.
  • Business and Industry
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IQVIA
  • Business and Industry
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Jazz Pharmaceuticals
  • Business and Industry
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Johnson & Johnson
  • Business and Industry
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McKesson
  • Business and Industry
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Medical Device Manufacturers Association
  • Business and Industry
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Merck
Merck & Co., Inc.
  • Business and Industry
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Mitsubishi Tanabe Pharma America
  • Business and Industry
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National Pharmaceutical Council
  • Business and Industry
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Neurocrine Biosciences
  • Business and Industry
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Novartis
Novartis Pharmaceuticals Corporation
  • Business and Industry
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Novo Nordisk
  • Business and Industry
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Otsuka
  • Business and Industry
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Pfizer Inc.
  • Business and Industry
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Pharmaceutical Research and Manufacturers of America (PhRMA)
  • Business and Industry
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Regeneron Pharmaceuticals
  • Business and Industry
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Roche Diagnostics
  • Business and Industry
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Sanofi
  • Business and Industry
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Syneos Health
  • Business and Industry
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Takeda Pharmaceuticals North America
  • Business and Industry
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Terumo BCT
  • Business and Industry
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Teva logo
Teva Pharmaceuticals
  • Business and Industry
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UCB
  • Business and Industry
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Viatris
  • Business and Industry
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