by Suzanne Alford | Jan 6, 2025 | Uncategorized
Gleason CelebrityGolf Classic Presented by Gallagher Thursday, February 6, 2025 Bayou Oaks at City Park – New Orleans, LA South Course – 1040 Filmore Avenue New Orleans, LA 70124 Registration | 9:30 AM Tee Time | 11:00 AM Hosted by: Steve Gleason, former...
by Kacie Banegas | Mar 12, 2024 | Uncategorized
by Suzanne Alford | Jan 9, 2024 | Latest News, Resources, Uncategorized
Share your voice with the Speech Accessibility Project!Now recruiting individuals with ALS to help speech recognition tools understand diverse voices, including those affected by ALS. The University of Illinois Urbana-Champaign will safeguard your personal information... by Suzanne Alford | May 1, 2023 | Uncategorized
I was diagnosed in November of 2012. For about fourteen years prior to that, I knew something was “wrong.” I got a second opinion. Yep. Confirmed by her, too. ALS. I have what’s called “Bulbar Palsy.” The “bulb of the brain” is where the speech and motor-skills are...
by Kacie Banegas | Apr 21, 2022 | Uncategorized
“For me, it was just like it ‘said on the tin,’ the room was ideal as it had double volume windows and Ren could wake up and see the mountain. We could see the girls get on the lifts and come down. So we could experience their day with them. It was...
by Kacie Banegas | Dec 20, 2021 | Uncategorized
As Team Gleason’s Chief Impact Officer, and as a result of Suzanne and Kacie’s persistence (shoutout to the Marketing Team!), I wanted to talk about the recent trip I took this year, meeting with key organizations and individuals who are truly helping Team Gleason...